Jodi's march for the Malaghan

By Jodi Butler Join Me

A year ago I had an appointment with my doctor. I had finished eight rounds of chemo (or so I thought) for Hodgkins Lymphoma and I was due to start radiotherapy in two days.

The doctor told me there was some bad news - the chemo hadn’t worked, there were new tumours growing in my chest cavity. She said I would need “salvage chemo” and if that went OK then I could have high dose chemo and a stem cell (bone marrow) transplant to save my life. Then she said in an upbeat way “you still have a 50% chance”.

50 percent chance of dying didn’t sound like very good odds to me. My boys were two and four years old at the time. I remember thinking that Xavier, my youngest, might not even remember me. 

Anyway, I am delighted to say that I finished 15 months of treatment a few weeks ago and my latest scan showed that I am cancer free – woohoo!

I’m obviously over the moon to not currently be dying. I’m feeling great! However to quote Rocky Balboa “the world ain’t all sunshine and rainbows”. The extreme treatment that I underwent has left me with scar tissue in my lungs, my liver isn’t working properly yet, I have ‘acute ovarian failure’ and I currently have a hairdo reminiscent of David Hasselhoff in Knight Rider.

So I decided that I really want to do something to support the new, exciting and less toxic cancer treatments on the horizon.  I also want to make something positive out of my misfortune and to celebrate the end (hopefully) of my treatment.

With that in mind, I am going to do a 25km trek from Paekakariki to my home to raise money for the Malaghan Institute of Medical Research here in Wellington. The Malaghan is doing research to help the immune system better recognise and respond to cancer cells, with an aim to create gentler, more effective cancer treatments. The Malaghan is a registered charity, and they have the noble goal of creating better, lower cost treatments.

Jodi’s march for the Malaghan

On Saturday 12 February, I am going to walk the c.25 kilometres from Paekakariki, to my home in Whitby, via the Escarpment Track and the Inlet.

I am asking my friends and family to join me on the walk, and/or to sponsor and donate to the Malaghan Institute via my fundraising page.

For those keen on joining me, please note the 10km Escarpment Track (also known as the ‘stairway to heaven’) is challenging. It has some really steep terrain and isn’t suitable for small children.

To find out more join my Facebook Event page here - https://facebook.com/events/s/jodis-march-for-the-malaghan/629449278241427/ 

Why the Malaghan?

One doctor told me that in the future the treatment I’ve been through will be considered barbaric. Of particular interest and relevance to me, the Malaghan Institute are doing clinical trials on ‘CAR T-cell therapy’ on otherwise terminal lymphoma patients. Basically with CAR T-cell therapy, they take some immune cells from a lymphoma patient, genetically modify the cells to tell them to fight the cancer cells, and then inject them back in to the patient. The results from clinical trials around the world are amazing and CAR T-cell therapy has the potential to fundamentally transform cancer treatment.

Thank you to my Sponsors

$515

Jonathan V

Its been a long time since we worked together. I have many fond memories of Curzon St and your fastidious work ethic and calm and precise way of working. I was lucky to reconnect with you around about the start of your journey and your updates stop my day in its tracks and see the big picture. I thank you for that and send love and strength.

$515

Uk Duncans

Awesome work buddy and go the Hoff!

$261

Chelydra Percy

$261

Marie And Brian

So proud of the you Jodi. Overcoming the cancer and giving back to help others in the future. Love you you heaps

$261

Cathie Russell

Such an amazing thing to do Jodi 😍

$250

Dwyer Fam

We’re so proud of you and the way you’ve powered through everything with grit and humor and the best attitude. You are a force to be reckoned with and you’re our hero. We love you!

$208.80

Jenni Davidson

Wishing you all the luck and love you deserve Jodi, here’s to many more years cancer free with your gorgeous boys xx

$208.80

Andrew Hallihan

$200

Team Freame

You're an inspiration Jodi!

$200

Graham & Lisa

Giddy Up! Awesome work Jods

$156.60

Carol, Don, Melissa And Louise

You are such an amazing person Jodi, an inspiration to us all! Your positivity and courage is infectious! You go girl!! Much love Carol, Don, Melissa and Louise Vaughan xx

$156.60

Lauren, Paul, Alex And Lachie X

Wish we could do it with you Jod. Love you xxx

$108.99

Mike Evans

Good on you Jodi

$104.40

Sally & Donald

Awesome news to hear your mum keeps in touch. Hope all goes well with your walk. Well done

$104.40

Mandy C

Love you Jodi. You’re a force of nature and an inspiration. Here’s to a happy, healthy & fun 2022.

$104.40

Amelia Clayton

Love your strength and braveness, I’ll come on this hike with you, and see if I can rally others 🖤

$104.40

Jean Jones

What an amazingly worthwhile cause!! Best of luck Jodi xxx

$104.40

Charlotte Hird

Jodi, You are amazing and doing an amazing thing here. Good luck. C x

$104.40

Claire Falck

Go for it Jodi!!

$104.40

Jean Mcclymont

$104.40

Kaetrin Stephenson

So proud of you Jodi - you have been inspirational as you have borne what life has thrown at you. Here's to your future.

$104.40

Shelley

Kia kaha - I dont know you, but this is such a worthy cause. I have just watched a friend slip away with her untreatable cancer and have had several others in my life beat theirs but treatment is almost unbearable at times. F@$?ncer. Thank you for doing this.

$104.40

Andrew Kitchen

Jodi, wishing you best of luck with the walk and all the strength in the world.

$104.40

Priya Sharma

You are such an inspiration! I wish you many many years of love and laughter with your boys!

$104.40

Jodi Butler

$104.40

Nic & Adam

$104.40

Kelly Moloney

Good on ya gal :) #superwoman

$104.40

Steve And Alex

From the Welsh Kiwis (The Wiwi’s)

$104.40

Harriet Staines

I wish I could walk it with you buddy!!! You rock!!!

$104.40

Kimberley And Craig

Smash it Jodi!!

$104.40

Lewis King

$104.40

Caroline Davies

You rockstar Jodi! So proud of you and sending you lots of love cx

$104.40

Nicola Eden

Your strength is incredible!! We all love you!!! Nic, James and the boys x

$104.40

Rachael Williams

You are such an inspiration to so many! Hope you know how much you are loved.

$104.40

Jonny & Lynda Anderson

You are amazing!

$104.40

Will Clavering

Great work Jodi. You’re an inspiration.

$104.40

Georgi Dwyer

$104.40

Kirsty Woods

You are amazing Jodi! ♥️

$104.40

Rich & Ali Mcnabb

Well done you Jodi!

$104.40

Su Davies

All the very best for the hike Jodi

$104.40

Simon Blay

Go for it Jodi!

$104.40

Kat Simpson

So happy to hear that you are cancer free and what an awesome thing to do to celebrate. We would love to be there doing it with you, but will have to settle for being there in spirit instead! Lots of love Kat & Mark xx

$104.40

Anonymous

Sending you strength, love and thanks - what an inspiration.

$100

Auntie Hilary And Uncle Maurice

$100

Sadie Verity

We don’t know one another but I read your story and think you’re amazing.

$100

Tom Williams

$52.20

David Boothby

In awe, respect and love.

$52.20

Nick Perryman

$52.20

Amanda Clark

$52.20

Karen

$52.20

Sarah Thomas

Hi Jodi, I don't know you but after reading your story I just thought what an amazing, courageous woman. Having a young child myself I felt fear thinking "gosh what if that was me". Anyway I'm so happy to read that you are cancer free, long may it continue.

$52.20

Ange Thompson

$52.20

Susan Philp

$52.20

Ally Small

What an inspiration! ❤️❤️

$52.20

Anonymous

$52.20

Tara Malpass

All the best for the march, you are an inspiration!

$52.20

Kevin Frank And Katy Stokes

Best wishes Jodi, and also fingers crossed that the CAR T-cell approach is a success.

$52.20

Anonymous

$52.20

Anonymous

$52.20

Kirstie Hawton

One word Jodi INSPIRATIONAL.. living my own journey through the dreaded ‘C’ and the way I cope is thinking about others that are in a worse position than me! . Thank you for sharing your heartfelt journey and over the moon you have come out the other side..

$52.20

Jenny Venn

Jodi you are an inspiration. Not only do I admire the way you openly and honestly discussed your cancer and treatment and scary odds of survival - I also admire the brave way you did this. You were also always quick to ask after other people during this terrible time x

$52.20

Joss Tasker

Huge huge love and wishing you all the very very best with your ongoing recovery - so wish I was there for your trek ❤️❤️❤️❤️❤️❤️❤️ No doubt it’ll be wonderful! Love to you and the whole family this Christmas 🌟🎄🌟 Side note: my dad had lymphoma and he did mistletoe therapy (injecting it!) (along with radiotherapy and operations) which worked well for him.

$52.20

Georgia Greer

Your continued strength and courage is amazing & a great inspiration to us all.

$52.20

Andrew Panter Mahon

Awesome cause, all the best for the hike!

$52.20

Michelle Kirrane

Looking forward to being able to join you on this part of your journey Jodi. I so admire your strength.

$52.20

Matt And Hanna

$52.20

Shab

You are amazing lovely. Go conquer like you always do 💪 xx

$52.20

Jeff Tennant

You're my new hero! I heard you had cancer but had no idea of the extent and reading your facebook post blow me away! If I wasn't in Perth I would 100? joining you on the walk!!! Lots of love to your and your family xox

$52.20

Ana Adams (mclennan)

Not sure if you remember me from school Jodi, but just heard about your journey via Facebook and I’m blown away. What a fighter you must be and what a relief to have the clear test. I admire you hugely! Good luck with the hike. Ana

$52.20

Emma Scott

Good luck with the trek x

$52.20

Claire Kav

Good luck for 12 Feb! x Claire

$52.20

Simon Blay

Go for it Jodi!

$52.20

Mary H

What a journey. Best of luck with the walk.

$50

Graeme Hughes

Well done, good news after your battle. Good luck on your walk.

$50

Sara Singh

Lots of love Jodi. So sorry about all the tough stuff you have been through. Here’s to 2022 being your year xxxx

$50

Michelle Stevens

$50

Stephanie Mccabe

You are a strong woman to have fought this and come out still fighting !! Best of luck for the walk

$50

Karen, Cam And Family Xxxx

You showed such courage and grace on your difficult journey. We were constantly amazed by you.

$31.32

Beth

Your story is incredible. All the best Jodi x

$26.10

Marcelle

You're amazing Jodi, such an inspiration. Go you! X

$26.10

Gavin Reid

Hey Jodi, So sorry to hear about your battle! Glad you have over come it though, so much more to do with your family. Hope the walk is a success and a bright future going forward.

$26.10

Lynnie Lock

A great cause. All the best and good luck. Also huge congrats on nailing your cancer treatment. It’s brutal but you survived!! As a fellow survivor I know how tough it can be but yours sounds more full-on than most. Well done x

$26.10

Roneeta Campbell-butler

Hi Jodi You don't know me. I'm Amelia Claytons friend from the UK. I met Amelia in London. I'm touched by your story and really pleased you e survive cancer! I hope my donation makes a difference to the lives of others that may find themselves in a similar situation as you. Take care and good luck with the trek sounds amazing!

$26.10

Helen Moran

All the very best - I’m sure you will do well. Xx

$26.10

Karl Henry

$26.10

Anonymous

I was inspired by your post. You are a fighter, fighting a good fight for Malaghan and improved cancer treatments. Wish you great joy in completing the trek.

$26.10

Angela Offord

You are a wonderful brave woman Jodi - I admire you immensely.

$26.10

Anonymous

$26.10

From Linkedin Fellow

Congratulations on beating the cancer. Happy to contribute to a great cause!

$26.10

Dael Climo

$26.10

Phil Haslam

$26.10

Jill Ross

Good on you Jodi!

$26.10

Bec Tunley

Go Jodi! Awesome stuff.

$26.10

Anonymous

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Maxine Dennis

Woww. Wishing you good luck with the trek. Wonder Woman!! Hoping this is the end of all your bad news! Maxine Dennis x

$26.10

Holly Redfern

$26.10

Anonymous

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Caroline Kane

Amazing stuff Jodi! You’re such a trouper. ❤️

$26.10

Anonymous

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Anke

Hi Jodi, I don’t know you personally but your story moved me and I just wanted to send you and your family the very best thoughts and wishes for your recovery, and contribute a little towards your mission. You’re awesome. Kia kaha Jodi.

$26.10

Yvonne

Go for it Jodi. You are an inspiration to us all!

$26.10

Jean Dredge

You are an inspiration to us all .So glad to hear that you are doing so well.xxxx

$26.10

Melanie

Hey Jodi, you are truly incredible! Hugs and love Melanie Dredge

$26.10

Dianne Roberts

Way to go Jodi!!

$25

Adele Brooks Baker

ACING IT GIRL - LOVE YOUR STRENGTH <3

$25

Monique Freshwater

Best wishes!

$25

Lynette Sinding

$25

Anonymous

You are inspiring

$25

Indianna C

Very inspiring Jodi, all the best!

$25

Darci Thompson

You are amazing! hope you and your friends have an fantastic walk. Sending positive thoughts for your continued health from today til the end of forever Thank you again what you’re doing is so important

$25

Andy Scott

Your story is inspirational and here's hoping that others facing your fate are able to suffer less damaging and awful treatments.

$25

Vicki

Love you Jodi x

$25

Savannah Williams

All the best for your preparation, every mumma deserves to see her babies grow, sending you strength & will power to smash that walk!!!!!

$10.44

Debbie Arnold

$5

Niraj Joshi

Kudos to you.. Keep going..

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